The U.S. government, together with major technology and healthcare leaders, has given the official start to building a patient-centric healthcare ecosystem. The initiative aims to ensure that every American has easier access to their health data and can use digital tools to share and manage this information across systems and providers.
At the Joep Lange Institute, we welcome this development. It aligns with our advocacy for Health Data Cooperatives – models that give people genuine ownership and control over their data, and the ability to decide collectively how it is used. While the U.S. plan focuses on interoperability and patient access as a first step, it represents important progress toward the larger goal of creating data systems that are people-centered, transparent, and equitable.
By strengthening individual control over health data, this initiative creates the foundations on which true cooperative governance can eventually be built – an outcome central to JLI’s mission of a fairer digital health ecosystem.
Read about the plans:
